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Writer's pictureErin Whiteley

Nanny Care and Support: A Parent's Ally in Chromosomal Deletion Syndrome

Meeting Olivia

I was introduced to the Forman family through a mutual family friend. She told me that the Forman’s were looking for a nanny for their two children. I still remember going to their house for the first time to meet them. Olivia had had a seizure the night before and they had just gotten home from the hospital a couple of hours prior. We covered the usual topics when discussing a nanny (i.e. experience, how long I have worked with kids, etc..). Then, we talked about seizures. I had never dealt with a child who had seizures. I did however grow up with a sister with Down Syndrome which came with similar physical hurdles and medical needs such as Olivia’s but not seizures. I distinctly remember leaving their house and feeling connected to Stephanie but unsure if I would be capable. I remember thinking that God has placed this family in my life for a reason. A week later, I joined the family and the rest is history.  Assisting The Forman Family


When you start working with a child with special needs you need to build not only their trust but their parents’ as well. As the nanny, you are taking what the parents do and implementing it throughout the day so the transition is seamless. Then, once the routine is established you develop a unique kind of relationship with the child and the two of you become buddies. We practiced her therapies together, Olivia started eating pureed diets by mouth when we were together, and when we hung out, her face would just light up. You are not there to change things, you are just there to help provide support and relief to the family. As the nanny, you also become their advocate. Olivia and I spent 8 hours a day together. We saw each other at our worst and our best. It was important to highlight all of the things that she was capable of doing throughout the day. 

The Gift of Special Needs Children


I believe that children with special needs are a gift from God. They teach us to slow down, have patience, and think about the things that are truly important in life. Kids like Olivia live every day in the moment. They have zero worries or concerns about the things life brings and just go with the flow. This is special. The bond I have with Olivia and her family is something that I do not take for granted. 


I love you Livy Lu! - Erin

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